Communication and Bioethics at the End of Life

Preface.- Recommended References for Beginners.- Section I.- Beginnings/Endings: Complex Issues with Pregnancy, Newborns, and Young Children.- Case 1 - Does the Nearness of Death Diminish the Value of a Life?.- Case 2 - When Cultures Collide and a Newborn Almost Dies.- Case 3 - When the Family Won't Decide.- Case 4 - Aggressive Treatment for a Child's Inoperable Tumor.- Case 5 - Is There Life After Death? A Case of Post-Mortem Sperm Retrieval.- Section II.- Decision-making: Families in the Mix.- Case 6 - What is the Standard of Care for a Corpse?.- Case 7 - When the Palliative Care Team Got Fired.- Case 8 - A Young Woman's Wish to Die.- Case 9 - When Parents Contest an Adult Child's Advance Directive.- Case 10 - Please Stop Torturing Me - Unless my Wife is in the Room!.- Case 11 - Who Should Make Treatment Decisions for a Battered Spouse?.- Section III.- Autonomy and other Ideals: Balancing Benefits and Burdens.- Case 12 - Something More Important than Life.- Case 13 - Are There Limits on Futile Care for Patients in the U.S. Illegally?.- Case 14 - To Treat . . .  or Not to Treat?.- Case 15 - A Patient's Right to Treatment (and a Physician's Right to Refuse).- Case 16 - A Depressed Caregiver Neglects His Own Health.- Conclusion.

Lori A. Roscoe is an Associate Professor in the Department of Communication at the University of South Florida, where she earned a PhD in Aging Studies. She teaches health communication, communication ethics, and end-of-life studies to undergraduate and graduate students, and has also taught in the medical school and the MBMH Program (Master's in Bioethics and Medical Humanities) in the USF Morsani College of Medicine. Her research focuses on communication at the end of life; past projects included examining the factors that led people to seek Jack Kevorkian's help in dying, family dynamics in the Terri Schiavo case, improving access to end -of-life care, and patient-physician communication. She has published widely in peer-reviewed journals, and serves on the ethics committees of several hospitals and hospices.

David P. Schenck is Professor Emeritus of the University of South Florida and is currently Affiliate Professor of Otolaryngology (Biomedical Ethics) in the USF Morsani College of Medicine. His PhD is in medieval French language and literature; his training in biomedical ethics was developed over many years through formal and informal work. He has taught biomedical ethics courses in the USF Honors College, the MBMA Program (Master's in Bioethics and Medical Humanities) in the USF Morsani College of Medicine, the USF College of Nursing, and the Otolaryngology-Head and Neck Surgery Program at USF. He has conducted funded research on oral cancer in Hispanic migrant farm workers. He has over 20 years of experience on hospital ethics committees and is a member of the IRB of a regional hospital consortium.

"This book is an honest and dramatic account of real people, with real issues, who are making real-life decisions about their death or the death of a loved one, with what that journey looks like through the eyes of a bio ethics consultant along with a communication specialist. ... I found Communination and Bioethies at the End of Life a wonderfully fresh bio ethics casebook that provides an important and novel construct to ethics consultation." (Lisa Anderson-Shaw, The American Journal of Bioethics, Vol. 18 (09), September, 2018)