Alone in My Universe (ePub)
Struggling with an Orphan Disease in an Unsympathetic World
(Sprache: Englisch)
Battling a chronic disease can often be a lonely and frustrating ordeal. It doesnt have to be. Alone in My Universe, compiled by Wayne Brown, presents a series of writings from patients suffering from acromegaly. Based on actual personal experiences, these...
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Produktinformationen zu „Alone in My Universe (ePub)“
Battling a chronic disease can often be a lonely and frustrating ordeal. It doesnt have to be. Alone in My Universe, compiled by Wayne Brown, presents a series of writings from patients suffering from acromegaly. Based on actual personal experiences, these narratives provide a primer of understanding for others dealing with this chronic, debilitating disease that affects many of the bodys systems.
This collaborative effort, written by real people touched by acromegaly, attempts to raise awareness of this low-profile disease. Each patient tells his or her story as it relates to the disease and its complications. Topics include the following:
Handling pre-diagnosis frustration
Dealing with fears of medical treatment and surgery
Managing family issues and work issues
Talking with children
Managing negative energy
Coping with good and bad days
Living life each day
With sympathy, empathy, and mutual support, Alone in the Universe shares the heartfelt stories of those suffering from acromegaly to show others that they are not alone in their battle.
This collaborative effort, written by real people touched by acromegaly, attempts to raise awareness of this low-profile disease. Each patient tells his or her story as it relates to the disease and its complications. Topics include the following:
Handling pre-diagnosis frustration
Dealing with fears of medical treatment and surgery
Managing family issues and work issues
Talking with children
Managing negative energy
Coping with good and bad days
Living life each day
With sympathy, empathy, and mutual support, Alone in the Universe shares the heartfelt stories of those suffering from acromegaly to show others that they are not alone in their battle.
Autoren-Porträt von Danielle Roberts
Wayne Brown was diagnosed with acromegaly in 2004 and is the founder of Acromegaly Community, Inc. He serves as a patient advisor to several medical companies. Brown lives in Buffalo, New York, where he works to support people around the world every day. Visit him online at www.AcromegalyCommunity.com.
Bibliographische Angaben
- Autor: Danielle Roberts
- 2011, 344 Seiten, Englisch
- Verlag: iUniverse
- ISBN-10: 1450295940
- ISBN-13: 9781450295949
- Erscheinungsdatum: 23.03.2011
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eBook Informationen
- Dateiformat: ePub
- Größe: 0.42 MB
- Mit Kopierschutz
Sprache:
Englisch
Kopierschutz
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