End of Life and People with Intellectual and Developmental Disability

Chapter 1: Current and New Developments in Death, Dying and End-Of-Life Care Policies and Practices.- Chapter 2: Experience of End-of-Life Issues by People with Intellectual Disability.- Chapter 3: Suicide and Autism: A Lifespan Perspective.- Chapter 4: Advance Care Planning with and for People who have Intellectual and Developmental Disabilities.- Chapter 5: Decision-Making at the End of Life: Challenges and Opportunities for People with Intellectual and Multiple Disabilities in Residential Homes in Germany.- Chapter 6: How People with Intellectual Disability are Dying and Implications for Quality Care.- Chapter 7: Living and Dying Well with Dementia.- Chapter 8: Building shared end-of-life supports and cross-training for hospice/palliative and intellectual disability services providers.- Chapter 9: Supporting People with Intellectual Disability at End of Life: Moral Distress among Staff Caregivers During COVID-19.- Chapter 10: Accessible Funerals and People with Intellectual Disability.- Chapter 11: End-of-Life Doulas and People Living with Intellectual and Developmental Disability.- Chapter 12: Palliative and End-of-Life Care for Children with Intellectual Disabilities.- Chapter 13: End-of-life Issues and Support Needs of People with Profound Intellectual and Multiple Disability.- Chapter 14: The Process of Dying.- Chapter 15: Use of Do-Not-Resuscitate Orders.- Chapter 16: Positioning the Issues: An Agenda for Future End-of-life Research, Policy and Practice.- Chapter 17 End-of Life Resources.

Roger J. Stancliffe, PhD FAAIDD FIASSIDD is Professor Emeritus, University of Sydney, Australia. His research aims to make a difference in the lives of people with intellectual disability. He co-edited a special journal issue on end-of-life, is past editor of the Journal of Intellectual & Developmental Disability, and received the AAIDD Research Award.